Groups that support the HER2-positive mBC community
We're all in this together
Click or tap to learn more about these organizations that provide vital support to the metastatic breast cancer (mBC) community. Each site offers different types of helpful information. Organizations can also be sorted by Wellness, Emotional, Financial, or Community.
14 out of 14 results
Breastcancer.org
The mission of Breastcancer.org is to help people make sense of the complex medical information about breast health and breast cancer, so they can make the best decisions for their lives.
Visit Breastcancer.org
CancerCare
CancerCare is the leading national nonprofit organization offering free, professional support services to anyone affected by cancer—including counseling, support groups, educational resources, financial assistance, resource navigation, and more.
Visit CancerCare
Cancer Support Community
The Cancer Support Community (CSC) is a professionally led nonprofit network of cancer support worldwide. CSC, along with its network of Gilda’s Club and CSC partners, provide social and emotional support and educational programming for people impacted by cancer, as well as a free community of support and education available over the phone and online.
Visit Cancer Support Community
The Chrysalis Initiative
The Chrysalis Initiative applies evidence-based strategies to reshape the individual and institutional knowledge, attitudes, and behaviors that impact health outcomes for Black women (and other disparate groups) with breast cancer.
Visit The Chrysalis Initiative
Día de la Mujer Latina
Día de la Mujer Latina promotes healthy behaviors within the underserved Latino community by providing culturally and linguistically proficient education services, early detection screening, and preventative care interventions.
Visit Día de la Mujer Latina
Living Beyond Breast Cancer
Living Beyond Breast Cancer is a national nonprofit organization that seeks to create a world that understands there is more than one way to have breast cancer. To fulfill its mission of providing trusted information and a community of support to those impacted by the disease, Living Beyond Breast Cancer offers live programs and on-demand emotional, practical and evidence-based content.
Over thirty years since its inception, the organization remains committed to creating a culture of acceptance—where sharing the diversity of the lived experience of breast cancer fosters self-advocacy and hope. For more information, visit LBBC.ORG or call (855) 807‑6386.
Visit Living Beyond Breast Cancer
Patient Advocate Foundation
The Patient Advocate Foundation provides case management services and financial aid to patients with chronic, life threatening, and debilitating illnesses.
Visit Patient Advocate Foundation
SHARE
SHARE provides dedicated, experienced support for women facing breast, ovarian, uterine, cervical, or metastatic breast cancer. SHARE is a compassionate community of knowledgeable survivors, women living with cancer, and healthcare professionals.
Visit SHARE
Sharsheret
Through personalized support, Sharsheret improves the lives of Jewish women and families living with or at increased genetic risk for breast or ovarian cancer. This national non-profit organization saves lives through educational outreach programs serving all women and men.
Visit Sharsheret
Tigerlily Foundation
Tigerlily Foundation's mission is to educate, advocate for, empower, and support young women—before, during, and after breast cancer; and to end disparities of age, stage, and color.
Visit Tigerlily Foundation
Touch, The Black Breast Cancer Alliance
Touch, The Black Breast Cancer Alliance drives the collaborative efforts of patients, survivors, advocates, advocacy organizations, health care professionals, researchers, and pharmaceutical companies to work collectively, with accountability, towards the common goal of eradicating Black Breast Cancer.
Visit Touch, The Black Breast Cancer
Alliance
Triage Cancer
Triage Cancer provides free education on the legal and practical issues including finances, insurance, and employment, that may impact individuals diagnosed with cancer and their caregivers.
Visit Triage Cancer
Unite For HER
Unite for HER’s mission is to enrich the health and well-being of those diagnosed with breast and ovarian cancer—for life, by funding and delivering integrative therapies.
Visit Unite For HER
Young Survival Coalition
Young Survival Coalition (YSC) is an international nonprofit dedicated exclusively to young adults diagnosed with breast cancer age 40 and under and their co-survivor support networks. Through educational resources and programming, annual conferences, and local and online support networks, YSC ensures no young adult faces breast cancer alone. For more information, visit youngsurvival.org.
Visit Young Survival Coalition
These organizations are independent and not owned or controlled by MacroGenics, which makes no representations about the services and information they may offer. Their inclusion on this website is not intended as an endorsement of the organization or the services offered, nor is it an indication of the organization’s endorsement of MARGENZA.
Personalized support for patients who have been prescribed MARGENZA
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Important Safety Information
What is the most important information I should know about MARGENZA?
MARGENZA can cause serious side effects, including:
- Heart problems that may affect your heart’s ability to pump blood. Your doctor will run tests to monitor your heart function before and during treatment with MARGENZA. Based on test results, your doctor may hold or
discontinue treatment with MARGENZA.
- Tell your healthcare provider right away if you get any of the following signs and symptoms: new or worsening shortness of breath, coughing, feeling tired, swelling of the ankles or legs, swelling of the face, irregular heart beat or palpitations, sudden weight gain of more than 5 pounds in 24 hours, dizziness or feeling light-headed, or loss of consciousness.
- Harm to your unborn baby. Tell your healthcare provider right away if you become pregnant or think you might be pregnant during treatment with MARGENZA. Exposure to MARGENZA during pregnancy or within 4 months prior
to conception can result in fetal harm.
- If you are able to become pregnant, your healthcare provider should do a pregnancy test before you start treatment with MARGENZA.
- Birth control should be used while receiving MARGENZA and for 4 months after your last dose of MARGENZA.
What are other possible serious side effects of MARGENZA?
Infusion-related reactions. MARGENZA is a medicine that is delivered into a vein through a needle as an infusion. MARGENZA has been associated with infusion-related reactions which can include fever, chills, joint pain, cough, dizziness, tiredness, nausea, vomiting, headache, sweating, fast heart rate, low blood pressure, itching, rash, hives, and shortness of breath. Your healthcare team will monitor you during treatment with MARGENZA and may slow or stop your infusion if you have side effects. You may need to permanently stop MARGENZA if you have a severe infusion reaction.
Before you receive MARGENZA, tell your doctor if you are breastfeeding. It is not known if MARGENZA could pass into breast milk and harm your baby.
What are the most common side effects of MARGENZA in combination with chemotherapy?
The most common side effects with MARGENZA in combination with chemotherapy are fatigue/weakness, nausea, diarrhea, vomiting, constipation, headache, fever, hair loss, abdominal pain, peripheral neuropathy (weakness, numbness, pain, and/or tingling in hands and feet), joint and muscle pain, cough, decreased appetite, shortness of breath, infusion-related reactions, redness/swelling and pain on the palms of the hands and soles of the feet (hand-foot syndrome), and pain in arms and legs.
You are encouraged to report side effects to the FDA at (800) FDA-1088 or www.fda.gov/medwatch or to MacroGenics at (844)-MED-MGNX (844-633-6469).
These are not all the possible side effects of MARGENZA. Your doctor may stop treatment if serious side effects happen. Be sure to contact your healthcare team right away if you have questions or are worried about any side effects.
What does MARGENZA treat?
MARGENZA is a prescription medicine approved for use in combination with chemotherapy for the treatment of adult patients with metastatic HER2-positive breast cancer who have received two or more prior anti-HER2 regimens, at least one of which was for metastatic disease.
Please see full Prescribing Information, including Boxed Warning.
Important Safety Information
What is the most important information I should know about MARGENZA?
MARGENZA can cause serious side effects, including:
- Heart problems that may affect your heart’s ability to pump blood. Your doctor will run tests to monitor your heart function before and during treatment with MARGENZA. Based on test results, your doctor may hold or
discontinue treatment with MARGENZA.
- Tell your healthcare provider right away if you get any of the following signs and symptoms: new or worsening shortness of breath, coughing, feeling tired, swelling of the ankles or legs, swelling of the face, irregular heart beat or palpitations, sudden weight gain of more than 5 pounds in 24 hours, dizziness or feeling light-headed, or loss of consciousness.
- Harm to your unborn baby. Tell your healthcare provider right away if you become pregnant or think you might be pregnant during treatment with MARGENZA. Exposure to MARGENZA during pregnancy or within 4 months prior
to conception can result in fetal harm.
- If you are able to become pregnant, your healthcare provider should do a pregnancy test before you start treatment with MARGENZA.
- Birth control should be used while receiving MARGENZA and for 4 months after your last dose of MARGENZA.
What are other possible serious side effects of MARGENZA?
Infusion-related reactions. MARGENZA is a medicine that is delivered into a vein through a needle as an infusion. MARGENZA has been associated with infusion-related reactions which can include fever, chills, joint pain, cough, dizziness, tiredness, nausea, vomiting, headache, sweating, fast heart rate, low blood pressure, itching, rash, hives, and shortness of breath. Your healthcare team will monitor you during treatment with MARGENZA and may slow or stop your infusion if you have side effects. You may need to permanently stop MARGENZA if you have a severe infusion reaction.
Before you receive MARGENZA, tell your doctor if you are breastfeeding. It is not known if MARGENZA could pass into breast milk and harm your baby.
What are the most common side effects of MARGENZA in combination with chemotherapy?
The most common side effects with MARGENZA in combination with chemotherapy are fatigue/weakness, nausea, diarrhea, vomiting, constipation, headache, fever, hair loss, abdominal pain, peripheral neuropathy (weakness, numbness, pain, and/or tingling in hands and feet), joint and muscle pain, cough, decreased appetite, shortness of breath, infusion-related reactions, redness/swelling and pain on the palms of the hands and soles of the feet (hand-foot syndrome), and pain in arms and legs.
You are encouraged to report side effects to the FDA at (800) FDA-1088 or www.fda.gov/medwatch or to MacroGenics at (844)-MED-MGNX (844-633-6469).
These are not all the possible side effects of MARGENZA. Your doctor may stop treatment if serious side effects happen. Be sure to contact your healthcare team right away if you have questions or are worried about any side effects.
What does MARGENZA treat?
MARGENZA is a prescription medicine approved for use in combination with chemotherapy for the treatment of adult patients with metastatic HER2-positive breast cancer who have received two or more prior anti-HER2 regimens, at least one of which was for metastatic disease.
Please see full Prescribing Information, including Boxed Warning.